I am writing to you in anticipation that you may be able to
find out why the following local and state departments are having difficulties
meeting the desperate needs of my family situation. I am a mother of four children
with my youngest, 14 year old son having severe autism; a severe intellectual
disability, an acquired brain injury, epilepsy, asthma and who is non verbal as
well as exhibiting aggressive and violent behaviours. I am also inflicted with
spina bifida which ten years ago resulted in me requiring urgent spinal surgery
to remove a lypoema from my spinal cord resulting me requiring a walking stick
and suffering from stamina and balance issues.
I am eligible for one and half hours of home help, once per
fortnight from the local council and they have not been able to allocate a regular cleaner to me
due to being heavily booked. I have not had my house cleaned for 8 weeks and I
am not sure when they will be able to find someone to help me out.
Secondly, I have an ISP support package from the Department
of Human Services which is presently not adequate to meet the needs
of my family situation. The new ISP which is significantly greater than my
original ISP has been verified for a number of years however I am still waiting
for this amount to be allocated. Given, Brandon ’s
behaviours have been getting increasingly worse , he is now requiring two
carers at a time from Gateways Support services and my present level of funding
does not meet these extra costs. The added burden on me is making it
increasingly untenable to continue looking after my son in my own home because
there are not enough supports in place to assist with meeting his needs.
I am hoping that you may be able to advocate on my behalf
because I am hoping to be able to look after my son in his home for as long as
I physically can, however to have some hope in doing this ,I really need the
support that has been promised to me.
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